7Sept08 ~ The Punk is Back!
Alexis is doing really well today. She looks great and is sitting up coloring, talking, playing with her toys and balloons.
Yesterday she had a nice visit from a beautiful golden retriever and also from Aunty Molly who arrived safely (and on time...yahoo...no big delays in Chicago).
Her creatinine was 0.6 today...which is awesome and we are starting to get her weened off ATG and onto a much less severe immuno-suppressant called Tacrolimus.
This Tuesday, there is a plan to remove the "stent" they installed temporarily between her kidney and bladder during her transplant to ensure things were draining properly. This stent is a site for bacteria to accumulate and they want to get it out as soon as possible. This will help with her current bladder infection. Wednesday morning they will do the swallowing study planned originally for 16Sep08 and then we will likely be discharged from the hospital.
Barb and the kids will stay with Aunty Molly and Maria (Gulenko) at the Nexus probably until the end of Oct'08 because the Nephrogists need to do weekly tests to ensure her new kidney is working properly and the immuno-suppressants are minimized for home maintenance.
On a sad note...our Uncle Tom (O'connor) is very ill and in hospital in Syracuse. Please rally the prayer troops and see if we can pull another miracle out of the Big Guy!
Luv to All!
The Flynns....