Well, first of all, I would like to apologize for not writing in a long time.  So Alexis was transplanted on the 27th of Aug.  We were discharged exactly two weeks after that and we went home from the hospital on a Wednesday.  The doctors sent us home with a boatload of medications.  That alone is pretty overwhelming.  We were all just trying to get it straight.  Alexis was trying to tolerate all the medications and the new feeding regime that was increased by over 1/3.  We had a rough week in the Hotel.  Further Alexis just never seemed to get better.  What I mean is she seemed Blah.........She finally had a couple of terrible nights and I knew something was wrong so I called the Renal folks and of course they wanted blood and to see her.  I brought her in and she was admitted on Monday 15 Sept for low 02 saturations.  After an X-ray it was found that her lungs were pretty wet and she needed to be on oxygen.

We are being discharged tomorrow, Saturday with a clean bill of health.  We also are loaded down with oxygen monitoring equipment from the hospital.  I didn't think we could fit any more into our hotel room.

The kidney folks seem to think that maybe she is getting more fluid than she can handle at home.  They have adjusted her fluid intake to something she can tolerate.  The other doctors have done everything they can think of to diagnose some kind of virus or bacteria but they cannot find one.  Leave to Alexis to once again stump the doctors.  

She's starting to have a lot more energy in the hospital but she is bored.  I can't wait to get her somewhere we can all play with her.'

Maria and Molly are doing well.  Maria and Jake have gotten a cold and Molly just arrived from Buffalo after attending my Uncle Tom's wake.  We are so glad to have her back.  Maria and I need a good sleep.

Jake has not been sleeping so I took him to the Doctor when he started sneezing a bunch of mucous.  The pediatrician told me that not only did he have a small cold but also 4 molars were erupting at the same time, not to mention the 4 teeth 2 on each side, which just broke the surface.  Poor Boy.  I feel bad for not giving him some Tylenol the other night

Anyway live an learn...  I hope tomorrow will be great!

Take Care,

Barb